Comments on: Bi-pap http://www.kingrat.us/2008/08/bi-pap Private Life Wed, 01 Feb 2012 22:20:46 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: burgunder http://www.kingrat.us/2008/08/bi-pap#comment-1202 burgunder Thu, 21 Aug 2008 20:35:21 +0000 http://www.kingrat.us/2008/08/bi-pap#comment-1202 Just now catching up on LJ. I'm sorry, Phil. I got nothing useful to say except I love you. Just now catching up on LJ. I’m sorry, Phil.

I got nothing useful to say except I love you.

]]> By: gkr http://www.kingrat.us/2008/08/bi-pap#comment-1201 gkr Wed, 20 Aug 2008 07:47:17 +0000 http://www.kingrat.us/2008/08/bi-pap#comment-1201 Mom won't sign the green paper. I've been through it with her. I'm hoping I can at least get her to do the ventilator part of the green paper. If not, there are two possibilities. We get lucky and she never does go to the hospital. Or that I can get to the hospital in time (I have a shorter distance + a freeway) and they listen to me (I have her advanced care directive in my car for this possibility). Mom won’t sign the green paper. I’ve been through it with her. I’m hoping I can at least get her to do the ventilator part of the green paper.

If not, there are two possibilities. We get lucky and she never does go to the hospital. Or that I can get to the hospital in time (I have a shorter distance + a freeway) and they listen to me (I have her advanced care directive in my car for this possibility).

]]> By: gargoylettelc http://www.kingrat.us/2008/08/bi-pap#comment-1200 gargoylettelc Wed, 20 Aug 2008 07:35:22 +0000 http://www.kingrat.us/2008/08/bi-pap#comment-1200 I'm sorry! I can only imagine how hard this is for you. *Virtual Hug* Unfortunately, if she stops breathing, and 911 is called, they will take all precautions to save her life. Now, paramedics don't carry ventilators per say, but they might intubate and her away, then she would arrive at some hospital where she would be on a vent. If there isn't something obvious like the POLST in plan site, they aren't going to read anything. She really needs to sign that bright green piece of paper to have her wishes honored. If you have not talked to the Hospice RNs about this upcoming situation and possible scenarios and what you could do, you should. They could give you some good guidance, and also talk with your Mom about possible outcomes. The hospice RNs I work with do this a lot, and families find it helpful for planning and how to react to situations. As far as contacting family, from other ALS patients I have seen and what you are describing, I would suggest calling family. No one has a crystal ball. Early is always better than too late, I would suspect. I’m sorry! I can only imagine how hard this is for you. *Virtual Hug*
Unfortunately, if she stops breathing, and 911 is called, they will take all precautions to save her life. Now, paramedics don’t carry ventilators per say, but they might intubate and her away, then she would arrive at some hospital where she would be on a vent. If there isn’t something obvious like the POLST in plan site, they aren’t going to read anything. She really needs to sign that bright green piece of paper to have her wishes honored. If you have not talked to the Hospice RNs about this upcoming situation and possible scenarios and what you could do, you should. They could give you some good guidance, and also talk with your Mom about possible outcomes. The hospice RNs I work with do this a lot, and families find it helpful for planning and how to react to situations.
As far as contacting family, from other ALS patients I have seen and what you are describing, I would suggest calling family. No one has a crystal ball. Early is always better than too late, I would suspect.

]]> By: gkr http://www.kingrat.us/2008/08/bi-pap#comment-1199 gkr Wed, 20 Aug 2008 04:17:15 +0000 http://www.kingrat.us/2008/08/bi-pap#comment-1199 She's been sleeping reclined for a year now. For 6 or 7 months in a hospital bed in the living room. She has to be fully upright to not have trouble breathing. And yeah, loads of not fun is a good way to put it. She’s been sleeping reclined for a year now. For 6 or 7 months in a hospital bed in the living room. She has to be fully upright to not have trouble breathing.

And yeah, loads of not fun is a good way to put it.

]]> By: a_muse_d http://www.kingrat.us/2008/08/bi-pap#comment-1198 a_muse_d Wed, 20 Aug 2008 04:13:45 +0000 http://www.kingrat.us/2008/08/bi-pap#comment-1198 could she sleep reclined instead of laying down all the way, or must she be sitting entirely upright to breathe without the bi-pap? this sounds like lots of not fun :\ could she sleep reclined instead of laying down all the way, or must she be sitting entirely upright to breathe without the bi-pap? this sounds like lots of not fun :\

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